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X-linked inheritance means that the faulty gene is located on the X chromosome, the larger of the two sex chromosomes.

Prof Mariya Moosajee at Moorfields Eye Hospital has asked us to share the message below about the clinical trial she is running. This trial is for a treatment that targets a particular section of the USH2A gene.

• News
• Usher syndrome

If you are considering employing someone with inherited sight loss, or have an employee recently been diagnosed with the condition, you will need to take steps to ensure that you treat them fairly and that they can work safely and effectively.

• Written

Genetic counsellors are specially trained healthcare professionals with extensive scientific knowledge who spend time talking to families living with inherited conditions.

Monday 19 May, 7.00pm - 8.00pm - Via Zoom - Come and join James and the group for their latest online social catch up.

• Local Peer Support Group

Our monthly e-Newsletter featuring the latest updates from Retina UK.

• e-Newsletter
• Audio

This stunning central London half marathon, takes in some of the capital’s world-famous landmarks on closed roads.

• Running
• London

Tuesday 27 May, 7.00pm - 8.30pm - via Zoom - Are you aged 18 to 30 and living with an inherited retinal dystrophy? Then come and join us for our latest Young Adults online social catch up and meet our new group facilitator Martik Aghajanian.

• Local Peer Support Group

Friday 23 May, 5.30pm - 9.30pm - In-person - Come and join Bhavini and the group for their latest outing to see an audio described performance of The Play That Goes Wrong at the Duchess Theatre in London.

• Local Peer Support Group

Saturday 24 May, 11am onwards - In-person - Please come and join Perm and the group for a fascinating day out at the West Midlands Police Museum.

• Local Peer Support Group