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Retina UK Sight Loss Survey 2025 Findings from our survey of over 600 people living with inherited sight loss. June 2025

Every experience counts: Insights from our sight loss survey

A huge thank you to everyone who completed our 2025 sight loss survey. This year we received over 600 responses. It follows similar surveys in 2019 and 2022 which led directly to the introduction of our Unlock Genetics and Discover Wellbeing resources, as well as shaping our work with the professional community who support people with inherited sight loss.

The cover of Look Forward Summer 2024 (issue 183) featuring a group of eight people looking down at the camera with blue sky above them

Look Forward – Summer 2024 – Issue 183

This edition includes exciting news about our Annual and Professionals’ Conferences. We hope as many of you as possible can join us in Manchester, or online, in September. You’ll also find updates about the latest research and a feature on one of our funded researchers, Dr Jörn Lakowski.

How we can support you in your role

Whether you are a professional looking for practical information for yourself, or practical or emotional support for your clients, online, by phone or face-to-face, we're here to help. All of our services are free to access and offered in a range of accessible formats. 

A megaphone with the words 'make your voice heard. Complete the Retina UK sight loss survey'

Help to shape our future

Would you like to help shape Retina UK’s future? Do you want to ensure decision-makers understand the impact of inherited sight loss? If so we’d love to hear from you.

ReNeuron trial FAQs

You may have heard that a cell-based treatment approach (sometimes referred to as a “stem cell treatment”), developed by a company called ReNeuron, is being tested in a clinical trial at Oxford Eye Hospital and other centres in the US and Europe.