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Familial Exudative Vitreoretinopathy (FEVR) is an inherited disorder that causes progressive vision loss.

X-linked retinoschisis (XLRS) is an inherited condition that causes early loss of mainly central vision in males.

Doyne honeycomb dystrophy is an inherited disorder which causes progressive sight loss.

Central Areolar Choroidal Dystrophy (CACD) is a rare inherited condition that affects the macula, the small area in the middle of the retina that is primarily responsible for our central vision.

Welcome to the winter edition of Look Forward. It’s packed full of news from our Conferences, the latest research news and an interview with Hassina Zeriri, one of our funded PhD students.

We have also included details of lots of ways you can get involved with Retina UK over the coming months, along with some suggested festive fundraising for the Christmas period.

• Look Forward
• Audio
• Written

Please get in touch with us using the method which suits you best. You'll find details of all of the different ways you can contact us on this page.

Our sight loss survey highlighted that you have a real appetite to get involved in representing the inherited sight loss community through activities like focus groups, surveys and research projects via the Retina UK Lived Experience Panel.

The Retina UK Annual Conference will be held in September. You can join the Conference in-person or online.

• Conferences
• Online

May is National Walking Month! Are you ready to join #TeamRetinaUK in May for our daily 5K challenge? Your support will allow us to continue supporting those who are living with inherited sight loss.

• Walks & Treks
• United Kingdom

A recording of the Retina UK Professionals' Conference on 19 September 2025. The Conference was held at the Holiday Inn, Regent's Park, London and online.

• Conference
• Video