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The aim of the site is to increase the level of awareness and understanding of genetic testing and genetic counselling among people living with inherited retinal dystrophies, empowering them to make fully informed decisions about their lives, healthcare and family planning.
Saturday 22 August 2026, 1.00pm - 7.00pm - In-person - Come and join Colin and the group at the Tyneside Irish Centre for their latest in-person event in Newcastle.
Tuesday 6 October 2026, 7.00pm - 8.00pm - via Zoom - Come and join facilitators Richard & Rachael for our latest meeting to hear from our guest speakers Dee Jones & Steve Hayward, Trustees at Sense Adventures.
Tuesday 3 November 2026, 7.00pm - 8.00pm - via Zoom - Please join facilitators Brian & Steve where we invite you to celebrate National Homemaker Day with us by sharing your tips, hints & advice on how we can make our home & garden easier to manage.
Thursday 10 September 2026, 7.00pm - 8.00pm - via Zoom - Please come and join facilitators Steve & Brian for our latest meeting where we are delighted to be joined by our guest speaker David Grigor, Artist, Author and Inclusive Creative Practitioner.
A huge thank you to everyone who completed our 2025 sight loss survey. This year we received over 600 responses. It follows similar surveys in 2019 and 2022 which led directly to the introduction of our Unlock Genetics and Discover Wellbeing resources, as well as shaping our work with the professional community who support people with inherited sight loss.
Our monthly e-Newsletter featuring the latest updates from Retina UK.
Our young adults got to grips with white water rafting recently, building confidence and resilience while having fun.
Inside this edition, set yourself a challenge in 2024, plus find out about our brand new lottery.
