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Graeme's son is living with retinitis pigmentosa and he has decided to take on an extreme challenge - running 250km across the Sahara Desert, with 6 stages, varying in length from 21km to 82 km, over 7 days.
Dr Nikolas Pontikos is a Senior Research Fellow at UCL Institute of Ophthalmology, and has been working on inherited retinal conditions for several years.
Tuesday 12 May 2026, 7.00pm - 8.00pm - via Zoom - Please come and join facilitator Stuart Francis and our new South Wales Peer Support Group where we are delighted to welcome guest speaker Becs Harris, Wellbeing Service Manager at Sight Cymru.
It was previously believed that female carriers of X-linked inherited retinal diseases (IRDs) like X-linked retinitis pigmentosa (RP and Choroideremia) remained unaffected by sight loss.
Join the Retina UK Lottery for a weekly dose of good fortune and good deeds!
Join our upcoming webinar to find out how you can get involved and fundraise for Retina UK this year.
Flip pancakes for people living with inherited sight loss. Take on our Flipping Fantastic Fundraising Challenge and try to flip as many pancakes as possible whilst raising money for Retina UK!
Together We Can: ways you can get involved!
Tuesday 14 April 2026, 7.00pm - 8.00pm - via Zoom - Please come and join facilitators Brian Coates & Steve Cox for our first meeting of 2026 where we are delighted to welcome our guest speakers and avid gardeners, John Huxley & Scott Racine.
Thursday 14 May 2026, 7.00pm - 8.00pm - via Zoom - Please come and join facilitators Steve Cox & Brian Coates for our latest meeting where we are delighted to be joined by our guest speaker Braille artist, Clarke Reynolds aka 'Mr Dot'.
