Stickler syndrome
Stickler syndrome is a genetic connective tissue disorder.
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Stickler syndrome is a genetic connective tissue disorder.
We carried out our first Sight Loss Survey in 2019 and used what we learned to improve our support. It was repeated in 2022. These are the findings.
The Retina UK Annual Conference will be held on Saturday 28 September. You can join the Conference in-person or online.
The Retina UK Professionals’ Conference is aimed at anyone who works with our community in a professional capacity.
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We’re all still buzzing from our recent conferences. We do hope you enjoyed them as much as we did. If you weren’t able to join us, then you can watch or listen to the recordings on our website.
Inside this edition, register now for our AI webinar on 7 December with Dr Nikolas Pontikos.
Did you join either of our Conferences this year? You can read about them inside this edition of Look Forward. We’ve had some fantastic feedback from our delegates so if you weren’t able to attend, you can watch or listen to the recordings from the day on our website.
Wednesday 25 September 2024, 7.00pm - 8.00pm - via Zoom - Come and hear from our guest speaker Gwyneth Boyes, the Blind Baker at our Autumn meeting.
The aim of the site is to increase the level of awareness and understanding of genetic testing and genetic counselling among people living with inherited retinal dystrophies, empowering them to make fully informed decisions about their lives, healthcare and family planning.