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Achromatopsia is a rare hereditary vision disorder affecting approximately 1 in 30,000 newborn babies.

Our Retina UK Peer Support Group network offers information and support via regular meetings both online or in-person.

The content on this site will have answered some of your queries about inherited sight loss and associated syndromes, but everyone’s circumstances are different and you may have further questions.

Welcome to the winter edition of Look Forward. It’s packed full of news from our Conferences, the latest research news and an interview with Hassina Zeriri, one of our funded PhD students. We have also included details of lots of ways you can get involved with Retina UK over the coming months, along with some suggested festive fundraising for the Christmas period.

• Look Forward
• Audio
• Written

Cataracts and macular oedema are both associated with inherited sight loss and may respond to treatment.

As well as many of the well-known races, we also have exclusive places available in hundreds of local runs. Wherever you live, you can run as part of #TeamRetinaUK this year!

• Running
• Close to home

Could you run the London Landmarks Half Marathon 2025 for #TeamRetinaUK?

• Running
• United Kingdom

RideLondon has been postponed for 2025, but if you would like to find out more information about future events, please get in touch to join our waiting list.

• Cycling
• London

Our Peer Support Groups are growing. Find out more about what's planned for the future.

Thursday 6 February, 7.00pm - 8.30pm - via Zoom - Are you aged 18 to 30 and living with an inherited retinal dystrophy? Then come and join us for our first online social of 2025.

• Local Peer Support Group