Search

Ashley has completed the London Marathon numerous times. He was part of #TeamRetinaUK in 2021 and talks here about his experience.

• Case study - supporter
• Written

Steve has been volunteering for Retina UK since its formation in 1976 and has been a part of the Helpline team since the early 1980s.. He remembers very well a caller named Khadeja, who called the Helpline multiple times, following her diagnosis with RP in 1999.

• Case study - community
• Written

Dan found out he had retinitis pigmentosa in February 2022, but he feels it has been “on cards for years”. He said he had “an inkling something was up but never did anything about it: a typical guy I guess!”

• Case study - community
• Written

Our community are the reason we are able to continue supporting those with inherited sight-loss conditions through research and practical support.

Martin's son was diagnosed with Stargardt’s at a young age which has led Martin to take a close interest in the progress of research into Retinal disease.

• Trustee
• Written

Joining us for an "Ask the Expert" session is Dr Roly Megaw.

• Webinar
• Audio
• Video

Mirugen – Unlocking the Power of Retina Regeneration

• News
• Retinitis pigmentosa
• Stargardt disease

These frequently asked questions should provide a response for most of the queries you might raise.

Our Medical Advisory Board (MAB) advises our Board of Trustees in order that they can approve grants for research projects.

Many inherited sight loss conditions occur when cells in the retina, which is the light-sensitive region at the back of the eye, deteriorate in an unpredictable way. These conditions are often referred to as inherited retinal dystrophies.