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Autosomal recessive inheritance

Autosomal recessive inheritance means that the faulty gene is on an autosome (any chromosome other than the sex chromosomes) and that both copies need to be faulty to cause sight loss

For professionals

Information for healthcare professionals: Genetic testing and counselling in inherited retinal disease

Logos for the group of charities involved in the joint statement

Joint statement on benefits and employment support

As a coalition of sight loss charities, we are calling on the Government to make the benefit system and employment support fit for purpose for blind and partially sighted people.

News

The cover of the Winter 2025 edition of Look Forward, featuring two of our volunteers cutting a special 50th anniversary cake

Look Forward – Winter 2025 – Issue 188

This is the final edition of Look Forward this year and what a year it has been! We’ve had some very positive feedback about our Conferences and the Big Give Christmas Challenge is back - a great opportunity to double your donation at no extra cost to you! We’ve included a handy ‘What’s on’ article which outlines some of our plans for 2026. We would like to take this opportunity to wish all of our readers a very Merry Christmas and a happy and fulfilling New Year.

e-Newsletter May 2025

Our monthly e-Newsletter featuring the latest updates from Retina UK.

Beware of online adverts about treatments

The Retina UK community is sometimes targeted by adverts online or in social media, offering invasive treatments for inherited sight loss.

News

Look Forward – Summer 2023 – Issue 180

Did you join either of our Conferences this year? You can read about them inside this edition of Look Forward. We’ve had some fantastic feedback from our delegates so if you weren’t able to attend, you can watch or listen to the recordings from the day on our website.

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