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Please get in touch with us using the method which suits you best. You'll find details of all of the different ways you can contact us on this page.

Bardet-Biedl syndrome (BBS) is an inherited condition which impacts many parts of the body including the retina.

Come together for Retina UK Day on Thursday, 10 October 2024 and help us raise awareness and funds for those who are living with inherited sight loss.

• Fundraising Events
• United Kingdom

Take on the Brighton Marathon with a seaside finish!

• Running
• Brighton

A challenge event like no other! We are now offering wing walking experiences at various locations, in aid of Retina UK.

• Extreme Challenges
• Various

May is National Walking Month! Are you ready to join #TeamRetinaUK in May for our daily 5K challenge? Your support will allow us to continue supporting those who are living with inherited sight loss.

• Walks & Treks
• United Kingdom

Come together for Retina UK Day on Thursday, 9 October 2025 and help us raise awareness and funds for those who are living with inherited sight loss.

• Fundraising Events
• United Kingdom

A research project funded by Retina UK helped pave the way to a new gene therapy that has recently produced encouraging results in two young people with achromatopsia, a condition that causes complete colour-blindness and poor overall vision from birth.

• News
• Achromatopsia

Our community is informed and knowledgeable about current research projects into the cause(s) of and treatments for these conditions.