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We carried out our first Sight Loss Survey in 2019 and used what we learned to improve our support. It was repeated in 2022. These are the findings.

• Audio
• Written

Familial Exudative Vitreoretinopathy (FEVR) is an inherited disorder that causes progressive vision loss.

Pattern dystrophy is an umbrella term for a group of retinal conditions. It is characterized by various patterns of pigment deposition within the macula.

James, who lives with retinitis pigmentosa, is running the TCS London Marathon in April 2025 to raise vital funds for Retina UK.

• Case study - community
• Written

A recording of the Retina UK Professionals' Conference on 27 September 2024. The Conference was held at the Pendulum Hotel in Manchester and online.

• Conference
• Audio
• Video

Cataracts and macular oedema are both associated with inherited sight loss and may respond to treatment.

Please get in touch with us using the method which suits you best. You'll find details of all of the different ways you can contact us on this page.

Bardet-Biedl syndrome (BBS) is an inherited condition which impacts many parts of the body including the retina.

Come together for Retina UK Day on Thursday, 10 October 2024 and help us raise awareness and funds for those who are living with inherited sight loss.

• Fundraising Events
• United Kingdom

Take on the Brighton Marathon with a seaside finish!

• Running
• Brighton