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Are you a parent or carer of a child or young person living with an inherited retinal dystrophy?

The latest podcast from Retina UK.

• Podcast
• Audio

Tuesday 28 April 2026, 7.00pm - 8.00pm - Via Zoom - We are pleased to invite you to join facilitator Suzanne Clarke and the group for their latest online social catch up.

• Local Peer Support Group

Join us for our upcoming webinar

• Webinar

During RP awareness month, Paul Bacon has shared how his diagnosis has impacted his life and shared messages about how non visually impaired people can support those living with inherited sight loss. To learn more about inherited sight loss please take the time to read Paul's story.

• Story
• Retinitis pigmentosa

Wednesday 29 April 2026, 7.00pm - 8.00pm - via Zoom - Please come and join facilitators Cindy & Jane for our second meeting with our guest speaker John Darker who will be sharing his love of audiobooks and knowledge around listening to them via Audible.

• Local Peer Support Group

Including a gift to Retina UK in your Will is an incredibly special way to help our vital work continue into the future.

In 2014 we funded an exciting new collaborative project. The UK Inherited Retinal Dystrophy Consortium (UKIRDC) Project brought together the four largest research groups in the UK specialising in inherited retinal diseases (IRDs).

During our 50th anniversary year, Retina UK was the focus of a BBC Lifeline Appeal on Sunday 16 November 2025.