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We sat down to discuss what our volunteers got up to on Retina UK day.

• Podcast
• Audio

Are you a parent or carer of a child or young person living with an inherited retinal dystrophy?

The latest podcast from Retina UK.

• Podcast
• Audio

Tuesday 22 July 2025, 7.00pm - 8.00pm - via Zoom - We are pleased to invite you to join us for the launch meeting of our new Dorset & South West Local Peer Support Group and delighted to introduce our volunteer group facilitator Suzanne Clarke.

• Local Peer Support Group

Our monthly e-Newsletter featuring the latest updates from Retina UK.

• e-Newsletter
• Audio

Luxturna, a gene therapy, is only for the treatment of Leber congenital amaurosis type 2 (LCA2) and severe early-onset RP caused by mutations in a specific gene called RPE65.

• FAQ
• Written

Retina UK is delighted to have awarded a new three-year research grant to Prof Majlinda Lako at Newcastle University for a project entitled: To establish AAV.PRPF31 gene augmentation in PRPF31-deficient RPE and photoreceptor cells and assess its efficacy in restoring RPE and photoreceptor function.

• News
• Retinitis pigmentosa

Our monthly e-Newsletter featuring the latest updates from Retina UK. Subscribe now to receive these updates directly to your email.

• e-Newsletter
• Audio
• Written

Including a gift to Retina UK in your Will is an incredibly special way to help our vital work continue into the future.

In 2014 we funded an exciting new collaborative project. The UK Inherited Retinal Dystrophy Consortium (UKIRDC) Project brought together the four largest research groups in the UK specialising in inherited retinal diseases (IRDs).