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Your generous support allows Retina UK to fund the work of leading scientists who are increasing understanding of inherited sight loss and moving us closer to treatments.
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Retina UK set to feature in BBC Lifeline Appeal
Catch up on our BBC Lifeline Appeal from November 2025.
Meet a Researcher: Dr Rachel Taylor
Dr Rachel Taylor is part of the UK Inherited Retinal Dystrophy Consortium (UKIRDC) team at the University of Manchester.
Meet our volunteers: Steve and Khadeja
Steve has been volunteering for Retina UK since its formation in 1976 and has been a part of the Helpline team since the early 1980s.. He remembers very well a caller named Khadeja, who called the Helpline multiple times, following her diagnosis with RP in 1999.
Meet our volunteers: Daniel Summers
Dan found out he had retinitis pigmentosa in February 2022, but he feels it has been “on cards for years”. He said he had “an inkling something was up but never did anything about it: a typical guy I guess!”
Graeme Ives: 6 marathons in the Sahara Desert for Retina UK
Graeme's son is living with retinitis pigmentosa and he has decided to take on an extreme challenge - running 250km across the Sahara Desert, with 6 stages, varying in length from 21km to 82 km, over 7 days.
Rose Earnshaw: An inspirational 8-year-old’s epic challenge
In August 2025, 8-year-old Rose Earnshaw is taking on a challenge like no other – completing 5 laps of her local village park (1 mile) every day throughout the month of August, in support of Retina UK’s vital work.
Our community
We are nothing without our amazing community. They are the reason we do what we do and are a constant source of inspiration to us.
e-Newsletter March 2026
Our monthly e-Newsletter featuring the latest updates from Retina UK.
e-Newsletter – February 2023
Our monthly e-Newsletter featuring the latest updates from Retina UK. Subscribe now to receive these updates directly to your email.