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We regularly make applications for grants to fund our information and support projects and have recently been successful in securing £12,000 from The National Lottery Community Fund.

• News

Biotechnology company ProQR has announced encouraging results from its phase 1/2 clinical trial of an innovative treatment for sight loss caused by faults in a specific section of the USH2A gene.

• News

Stem cells are a special type of cell, which under the right conditions can be encouraged to grow into any other type of cell in the body, including retinal cells (rods, cones and retinal pigment epithelial cells).

Inside this edition, register now for our AI webinar on 7 December with Dr Nikolas Pontikos.

• Look Forward
• Audio
• Written

The BBC covered a story on Monday 24 May about optogenetics partially restoring the sight of a man living with retinitis pigmentosa in France.

• News

We’re all still buzzing from our recent conferences. We do hope you enjoyed them as much as we did. If you weren’t able to join us, then you can watch or listen to the recordings on our website.

• Look Forward
• Audio
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Saturday 5 September 2026, 12.30pm - 4.00pm - In-person - Please come and join facilitator Bhavini Makwana and the group at the Elephant & Barrel in Stockwell for a special celebration looking back on 50 years of peer support in London & the Southeast.

• Local Peer Support Group

Tribute to Retina UK founder Lynda Cantor MBE

• News

Nurturing a new generation of scientists is a vital investment in the future of retinal disease research, so we are delighted to be funding, in collaboration with the Macular Society, a new PhD studentship at Oxford University, supervised by Professor Robert MacLaren.

• Case study - research
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Bhavini was diagnosed with RP in 1997 aged 17. The consultant who confirmed her diagnosis told her that “there was no cure or treatment and she should prepare to go blind".

• Case study - community
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