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Russ was diagnosed with Choroideremia at the age of 11, after visiting caves in Spain and not being able to see anything.

• Case study - community
• Written

Emily Kearney is mum to four boys, aged four to 13, two of whom are living with an inherited sight loss condition.

• Case study - community
• Written

Simon talks about his experience of genetic testing and counselling.

• Case study - community
• Video

Katerina joined the Retina UK team at the start of 2023 after hearing about the charity through her involvement in a research project at the University of Bath, where she works as an academic.

• Case study - community
• Written

Jing Yu is a Research Assistant at the Nuffield Department of Clinical Neurosciences at the John Radcliffe Hospital in Oxford.

• Case study - research
• Written

The cost-of-living crisis is having a major impact on the lives of blind and partially sighted people. Many people are becoming increasingly concerned about how they will make ends meet. Sight Loss Charities have come together as between us we can offer help and support.

• News

Different inherited sight loss conditions present noticeable symptoms at different times.

• Written

Dr Nikolas Pontikos is a Senior Research Fellow at UCL Institute of Ophthalmology, and has been working on inherited retinal conditions for several years.

• Case study - research
• Written

When we talk about gene therapy we are usually referring to use of a harmless virus, called a vector, to deliver a normal copy of a defective gene into the cells of the eye.

Thank you to all those who completed our recent Sight Loss Survey – almost 700 of you took the time to share your experiences.

• News