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For people living with inherited retinal conditions, finding others who understand can make a profound difference. In the South-West, volunteers Suzanne and Anne are helping to create those connections – offering support, understanding and a strong sense of community across a wide and largely rural area.
Inside this edition, set yourself a challenge in 2024, plus find out about our brand new lottery.
Tomasz Tomkiewicz is undertaking a PhD studentship funded by Retina UK and The Macular Society.
This edition includes exciting news about our Annual and Professionals’ Conferences. We hope as many of you as possible can join us in Manchester, or online, in September. You’ll also find updates about the latest research and a feature on one of our funded researchers, Dr Jörn Lakowski.
Anna and Ellie live with different inherited retinal conditions, but their journeys share a powerful thread: a passion for technology, a commitment to accessibility, and a desire to support others living with sight loss.
Since the publication of this newsletter our founder and honorary president Lynda Cantor MBE has passed away. We are all deeply saddened by this news.
As part of our aim to nurture young scientists, we are very pleased to introduce one of our new PhD students as part of a co-funding agreement with the Macular Society.
For Jane and Cindy, books have always been more than entertainment. They are a source of comfort, escape and connection – and now, through our new ‘Talking’ Books Peer Support Group, they are a way to bring people together and feel less alone.
When Tilly Dowler talks about sight loss, she does so with honesty, humour and an infectious determination to make the most of every opportunity.
Thank you to our fabulous 5K a Day in May supporters who raised more than £8,000 this year.
