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During our 50th anniversary year, Retina UK will be the focus of a BBC Lifeline Appeal on Sunday 16 November 2025 at 12.45pm.

This July, Ben Ramus will lead a group of twelve adventurers as they take on the renowned National Three Peaks Challenge, in aid of national sight loss charity, Retina UK. Ben has decided to take on the epic challenge in recognition of two of his uncles’ sight loss journey, as they live with the rare inherited sight loss condition, retinitis pigmentosa.

• Story
• Retinitis pigmentosa

Imagine, if you can, evading capture from an elite team of hunters for 21 days when you’re blind! Ste and his co-fugitive, Chris, did just that in the new series of Hunted (Channel 4) which starts on Sunday 12 October.

• Story
• Retinitis pigmentosa

Join 2000 walkers and trek 25km across the Capital.

• Walks & Treks
• London

The aim of these pages is to increase the level of awareness and understanding of genetic testing and genetic counselling among people living with inherited retinal dystrophies, empowering them to make fully informed decisions about their lives, healthcare and family planning.

Mark your special day, whilst fundraising for people with inherited sight loss.

The following questions are often asked by people contacting Retina UK.

Bhavini was diagnosed with RP in 1997 aged 17. The consultant who confirmed her diagnosis told her that “there was no cure or treatment and she should prepare to go blind".

• Case study - community
• Written

The cover of this edition celebrates the success of our amazing London Marathon team. Together they have raised more than £43,000.

• Look Forward
• Audio
• Written

My name is Mark Baxter and from an early age I was diagnosed with a deteriorating retinal eye condition called retinitis pigmentosa or RP for short, which will slowly lead to blindness.

• Case study - community
• Written