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Saturday 22 August 2026, 1.00pm - 7.00pm - In-person - Come and join Colin and the group at the Tyneside Irish Centre for their latest in-person event in Newcastle.

• Local Peer Support Group

Rachael first noticed she had sight problems at the age of 15. She went to her local eye clinic, who said she had an astigmatism.

• Case study - community
• Written

Biotechnology company ProQR has announced encouraging results from its early analysis of the phase 1/2 trial of QR-421a, an innovative approach to treating sight loss caused by mutations in a particular section of the USH2A gene.

• News
• Usher syndrome

Prof Dominic Ffytche will provide an explanation of what Charles Bonnet Syndrome is, the science behind it, and share some potential coping strategies for people who experience visual hallucinations.

• Webinar
• Video

We recently received an update on the latest research into Charles Bonnet Syndrome from Dr Jasleen Jolly as part of a Retina UK podcast about visual hallucinations.

• News
• Charles Bonnet Syndrome

Our monthly e-Newsletter featuring the latest updates from Retina UK.

• e-Newsletter
• Audio
• Written

Our monthly e-Newsletter featuring the latest updates from Retina UK.

• e-Newsletter
• Audio
• Written

Your generous support allows Retina UK to fund the work of leading scientists who are increasing understanding of inherited sight loss and moving us closer to treatments.

• News

Colin was born in Dumfries and now lives near Glasgow. He is living with Usher syndrome, a dual sensory loss condition affecting his eyes and his hearing. He and his wife, Lyn, both have guide dogs: Jumble and Yozi.

• Case study - Ambassador
• Written

We’re all still buzzing from our recent conferences. We do hope you enjoyed them as much as we did. If you weren’t able to join us, then you can watch or listen to the recordings on our website.

• Look Forward
• Audio
• Written