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The content on this site will have answered some of your queries about inherited sight loss and associated syndromes, but everyone’s circumstances are different and you may have further questions.

Four women in a research lab. They are all wearing white lab coats

Gene Team Appeal 2024

For almost 50 years, Retina UK has funded the best science, searching for genes and treatments for everyone living with inherited retinal dystrophies (IRDs). Support the search for treatments for everyone and join our campaign to build the ultimate Gene Team of tomorrow.

Image shows a runner stood smiling with her thumbs up. She is wearing a blue Retina UK running vest with the 'Retina UK' logo in white on the front. She is also wearing a 2022 London Marathon medal.

2023 TCS London Marathon

Join #TeamRetinaUK for the iconic 2023 TCS London Marathon! Soak up the incredible atmosphere as you run from Blackheath to The Mall finish line where you’ll get your very own marathon medal.

A male runner smiles as he holds his Marathon medal.

TCS London Marathon 2025

Join #TeamRetinaUK for the iconic 2025 TCS London Marathon! Soak up the incredible atmosphere as you run from Blackheath to The Mall finish line where you’ll get your very own marathon medal.

Forget me not flowers

Giving in memory

Celebrate the life of your loved one, by donating in their memory and help us fund more research and support, now.