Local peer support groups
Our Retina UK Peer Support Group network offers information and support via regular meetings both online or in-person.
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Our Retina UK Peer Support Group network offers information and support via regular meetings both online or in-person.
Best disease, also known as Best vitelliform macular dystrophy (BVMD), is is an inherited eye condition associated with progressive degeneration of the macula and is a form of juvenile macular dystrophy.
Retinitis pigmentosa (RP) is an inherited eye condition that affects the photoreceptor cells responsible for capturing images from the visual field.
Stargardt disease is the most common form of juvenile macular dystrophy (or inherited degeneration).
Leber Congenital Amaurosis (LCA) is a rare genetic eye disease that appears at birth or in the first few months of life.
Stickler syndrome is a genetic connective tissue disorder.
Choroideremia is a genetic condition that causes progressive vision loss, mostly in males.
Alstrom syndrome is an inherited condition which affects many body systems.
Join the Retina UK membership today! Anyone is welcome to join; whether you are living with a sight loss condition yourself, related to somebody who is, or if you are working as a sight loss professional.
A recording of the Retina UK Professionals' Conference on 27 September 2024. The Conference was held at the Pendulum Hotel in Manchester and online.