Search results
The aim of the site is to increase the level of awareness and understanding of genetic testing and genetic counselling among people living with inherited retinal dystrophies, empowering them to make fully informed decisions about their lives, healthcare and family planning.
Autosomal recessive inheritance means that the faulty gene is on an autosome (any chromosome other than the sex chromosomes) and that both copies need to be faulty to cause sight loss
If you, or a close relative, are living with a genetic sight loss condition, there may be a chance that your children will inherit it.
We sat down to discuss what our volunteers got up to on Retina UK day.
Clock up 100 miles on your bike with this virtual challenge.
Take on a challenge with #TeamRetinaUK and run, jog or walk 10 miles in your neighbourhood whilst raising money for our cause.
Join our upcoming webinar to hear from our Fundraising manager James Clarke, as he talks to some of our 2025 London Marathon runners!
We are delighted to welcome Kathy Evans as our new Chair of Trustees.
If you are a cane user, you may be interested to hear about the new cane tip introduced by Rotacaster that offers improved sensory and auditory feedback, alongside many other features.
Last year, with your help, we raised an incredible £53,752, which made great strides in helping our medical research recover from the pandemic.
