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It’s not very often that we come across a researcher working on a project inspired by their own lived experience of a sight loss condition.

• Case study - research
• Written

The latest webinar from Retina UK.

• Webinar
• Audio
• Video

Are you a parent or carer of a child or young person living with an inherited retinal dystrophy?

Amar Latif is an adventurer, entrepreneur, TV presenter and public speaker. He became an Ambassador for Retina UK in 2020.

• Case study - Ambassador
• Written

Vanessa is the General Counsel at the Alan Turing Institute, the UK’s national data science and artificial intelligence research institute.

• Trustee
• Written

Join us for our upcoming webinar!

• Webinar

A new Retina UK podcast that introduces our new chair of trustees, Kathy Evans.

• Podcast
• Audio

Fundraising for Retina UK means a lot to me - both my dad and my nephew have been affected by inherited sight-loss, and I've seen first-hand the incredible work this charity does.

• Case study - supporter
• Written

The aim of the site is to increase the level of awareness and understanding of genetic testing and genetic counselling among people living with inherited retinal dystrophies, empowering them to make fully informed decisions about their lives, healthcare and family planning.

Autosomal recessive inheritance means that the faulty gene is on an autosome (any chromosome other than the sex chromosomes) and that both copies need to be faulty to cause sight loss