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It is important to avoid harming your vision, particularly if you have an inherited sight loss condition.

Join us to find out how your donations make a direct different and fund research.

• Webinar

Our volunteers are highly valued members of the Retina UK team and their roles are essential to help support and enable people affected by inherited sight loss to live fulfilling lives.

• Impact Report
• Audio
• Written

In January 23-year-old Jake Ternent became the first person with an inherited sight loss condition to be treated in the UK with Luxturna (voretigene neparvovec) for Leber congenital amaurosis (LCA).

• News
• Leber congenital amaurosis (LCA)

The Royal National Institute of Blind People (RNIB) have awarded Retina UK the Visibly Better Employer quality standard.

• News

Researchers have developed PEDF-based eye drops that show promise in slowing retinal degeneration in mice with retinitis pigmentosa, potentially offering a non-invasive treatment option for preserving vision in the future.

• News
• Retinitis pigmentosa

The project aims to develop a cost effective method of examining the entire ABCA4 gene to look for variations that might cause disease.

• Case study - research
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It’s not very often that we come across a researcher working on a project inspired by their own lived experience of a sight loss condition.

• Case study - research
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Amar Latif is an adventurer, entrepreneur, TV presenter and public speaker. He became an Ambassador for Retina UK in 2020.

• Case study - Ambassador
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Vanessa is the General Counsel at the Alan Turing Institute, the UK’s national data science and artificial intelligence research institute.

• Trustee
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