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Are you a parent or carer of a child or young person living with an inherited retinal dystrophy?

Fundraising for Retina UK means a lot to me - both my dad and my nephew have been affected by inherited sight-loss, and I've seen first-hand the incredible work this charity does.

• Case study - supporter
• Written

Join us for our upcoming webinar!

• Webinar

Our monthly e-Newsletter featuring the latest updates from Retina UK.

• e-Newsletter
• Audio

Have you ever been tempted to take part in the TCS London Marathon? In 2022 the TCS London Marathon raised £58.3 million for charity so it’s a vital source of income.

• Webinar
• Audio
• Video

The latest webinar from Retina UK.

• Webinar
• Audio
• Video

The aim of the site is to increase the level of awareness and understanding of genetic testing and genetic counselling among people living with inherited retinal dystrophies, empowering them to make fully informed decisions about their lives, healthcare and family planning.

Join our upcoming webinar to hear from our Fundraising manager James Clarke, as he talks to some of our 2025 London Marathon runners!

• Webinar
• Online

Autosomal recessive inheritance means that the faulty gene is on an autosome (any chromosome other than the sex chromosomes) and that both copies need to be faulty to cause sight loss

If you, or a close relative, are living with a genetic sight loss condition, there may be a chance that your children will inherit it.