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The BBC covered a story on Monday 24 May about optogenetics partially restoring the sight of a man living with retinitis pigmentosa in France.

• News

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It’s not very often that we come across a researcher working on a project inspired by their own lived experience of a sight loss condition.

• Case study - research
• Written

It was previously believed that female carriers of X-linked inherited retinal diseases (IRDs) like X-linked retinitis pigmentosa (RP and Choroideremia) remained unaffected by sight loss.

• News
• Choroideremia
• Retinitis pigmentosa

Rob is a Chief Technology Officer based in Manchester, with over 20 years’ experience leading technology, software development and digital transformation.

• Trustee
• Written

Join us for our upcoming webinar!

• Webinar

It is important to avoid harming your vision, particularly if you have an inherited sight loss condition.

We sat down to discuss what our volunteers got up to on Retina UK day.

• Podcast
• Audio

Our volunteers are highly valued members of the Retina UK team and their roles are essential to help support and enable people affected by inherited sight loss to live fulfilling lives.

• Impact Report
• Audio
• Written

The project aims to develop a cost effective method of examining the entire ABCA4 gene to look for variations that might cause disease.

• Case study - research
• Written