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Dorset & Southwest Local Peer Support Group
Tuesday 17 February 2026, 7.00pm - 8.00pm - via Zoom - We are pleased to invite you to join facilitator Suzanne Clarke and the Dorset & Southwest group for their first online social catch up of the year.
Grant from The National Lottery Community Fund
We regularly make applications for grants to fund our information and support projects and have recently been successful in securing £12,000 from The National Lottery Community Fund.
Potential drug targets identified for RP
A recently published study has described numerous disease mechanisms that appear to be common across different types of inherited sight loss, suggesting that there is significant potential for drug treatments that could work regardless of the underlying causative gene.
Meet our community: Mark Baxter
My name is Mark Baxter and from an early age I was diagnosed with a deteriorating retinal eye condition called retinitis pigmentosa or RP for short, which will slowly lead to blindness.
‘Talking’ Creative Arts Peer Support Group
*RESCHEDULED* Tuesday 3 March 2026, 7.00pm - 8.00pm - via Zoom - Please come and join facilitators Steve Cox & Brian Coates for our first 'Talking' Creative Arts meeting of the year where will be joined by Artist and Sculptor, Aaron McPeake.
ProQR announces suspension of LCA10 and USH2A clinical trials
Biotechnology company ProQR has announced that its clinical trials of sepofarsen for Leber congenital amaurosis type 10 and ultevursen for USH2A-mediated retinitis pigmentosa will be wound down with immediate effect.
‘Talking’ Tech Peer Support Group
Tuesday 24 March 2026, 7.00pm - 8.00pm - via Zoom - Join us for our latest meeting where we are delighted to introduce Anna Holloway & Ellie Dowdy as our new facilitators of the Tech group alongside our guest speaker Chris Moreton from HumanWare.
SB-007, we’ve been expecting you
Introducing Splice Bio, a genetic medicines company with some exciting developments for Stargardt’s patients.
Meet our community: James Clarke
Aged 20, James was diagnosed with retinitis pigmentosa at a routine eye appointment in September 2015 and registered partially sighted, just prior to buying his first car and taking his driving test.