Search

Search results

A group of people seated around a table. A man in the foreground is wearing a Retina UK tshirt with his back to the camera

Join our Lived Experience Panel

Our sight loss survey highlighted that you have a real appetite to get involved in representing the inherited sight loss community through activities like focus groups, surveys and research projects via the Retina UK Lived Experience Panel.

Four people sitting in a line. The person furthest away from the camera is the only one facing towards it. He is wearing a white shirt

Involving our community

Our community is informed and knowledgeable about current research projects into the cause(s) of and treatments for these conditions.

Blindingly chatty podcast header with two speech bubbles and a visual representation of audio below

Podcast: Blindingly Chatty – episode two

In this episode Laura and Mark talk about their dreams and how they see the world in sleep. Mark is living with retinitis pigmentosa so his sight has deteriorated over his life, whereas Laura lost her sight at a very young age. They also briefly cover Charles Bonnet Syndrome (CBS).