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Our Retina UK Peer Support Group network offers information and support via regular meetings both online or in-person.

The content on this site will have answered some of your queries about inherited sight loss and associated syndromes, but everyone’s circumstances are different and you may have further questions.

Best disease, also known as Best vitelliform macular dystrophy (BVMD), is is an inherited eye condition associated with progressive degeneration of the macula and is a form of juvenile macular dystrophy.

Retinitis pigmentosa (RP) is an inherited eye condition that affects the photoreceptor cells responsible for capturing images from the visual field.

Since we were founded in 1976, we have invested more than £16.5million into some of the most pioneering medical research - because of amazing supporters like you.

Stargardt disease is the most common form of juvenile macular dystrophy (or inherited degeneration).

Leber Congenital Amaurosis (LCA) is a rare genetic eye disease that appears at birth or in the first few months of life.

Stickler syndrome is a genetic connective tissue disorder.

Choroideremia is a genetic condition that causes progressive vision loss, mostly in males.

Alstrom syndrome is an inherited condition which affects many body systems.