Search

Alstrom syndrome is an inherited condition which affects many body systems.

Come together for Retina UK Day on Thursday, 10 October 2024 and help us raise awareness and funds for those who are living with inherited sight loss.

• Fundraising events
• United Kingdom

Leber Congenital Amaurosis (LCA) is a rare genetic eye disease that appears at birth or in the first few months of life.

We are currently funding a range of exciting projects and programmes, all of which aim to enhance our understanding of inherited sight loss, and inform the development of treatments for the estimated two million people affected worldwide.

Could you take on an adventure of a lifetime for Retina UK and take part in the Sahara Desert Trek in November 2025?

• Walks and treks
• United Kingdom

The Retina UK Professionals’ Conference is aimed at anyone who works with our community in a professional capacity.

• Conferences
• Online

These very rare syndromes (NARP, Bassen-Kornweig, PXE, Norrie) affect the eyes as well as other parts of the body.

Charles Bonnet syndrome (CBS) causes people who have lost a lot of sight to see things that aren’t real (hallucinations).

Join the Retina UK membership today! Anyone is welcome to join; whether you are living with a sight loss condition yourself, related to somebody who is, or if you are working as a sight loss professional.

Familial Exudative Vitreoretinopathy (FEVR) is an inherited disorder that causes progressive vision loss.