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Cone-rod dystrophies are a group of inherited diseases that affect the photoreceptor (light sensing) cells that are responsible for capturing images from the visual field.

Achromatopsia is a rare hereditary vision disorder affecting approximately 1 in 30,000 newborn babies.

The Retina UK Annual Conference will be held on Saturday 28 September. You can join the Conference in-person or online.

• Conferences
• Online

X-linked retinoschisis (XLRS) is an inherited condition that causes early loss of mainly central vision in males.

We carried out our first Sight Loss Survey in 2019 and used what we learned to improve our support. It was repeated in 2022. These are the findings.

• Audio
• Written

Our Retina UK Peer Support Group network offers information and support via regular meetings both online or in-person.

A challenge event like no other! We are now offering wingwalking experiences at various locations, in aid of Retina UK.

• Extreme challenges
• Various

You can download the last three years’ Trustees’ Annual Report & Accounts. They are also available on the Charity Commission website.

• Impact Report
• Written

Usher syndrome is an inherited condition that affects both hearing and vision.

Refsum syndrome is an inherited metabolic condition, associated with elevated phytanic acid plasma levels, which impacts many body systems.