Family planning
If you, or a close relative, are living with a genetic sight loss condition, there may be a chance that your children will inherit it.
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Ride for Retina UK
Clock up 100 miles on your bike with this virtual challenge.
10 For 10 Virtual Challenge 2025
Take on a challenge with #TeamRetinaUK and run, jog or walk 10 miles in your neighbourhood whilst raising money for our cause.
Improved sensory and auditory function cane tip
If you are a cane user, you may be interested to hear about the new cane tip introduced by Rotacaster that offers improved sensory and auditory feedback, alongside many other features.
The Big Give Christmas Challenge 2022
Last year, with your help, we raised an incredible £53,752, which made great strides in helping our medical research recover from the pandemic.
Meet our volunteers: Joe Rizzo-Naudi
Our amazing volunteers are diverse in age, background and ethnicity. The one thing they have in common is that they are all living with, or directly affected by, an inherited sight loss condition.
Sirius clinical trial – Exon 13 mutation of USH2A
Prof Mariya Moosajee at Moorfields Eye Hospital has asked us to share the message below about the clinical trial she is running. This trial is for a treatment that targets a particular section of the USH2A gene.
Optogenetics
The BBC covered a story on Monday 24 May about optogenetics partially restoring the sight of a man living with retinitis pigmentosa in France.
Positive early findings from ProQR trial of USH2A therapy
Biotechnology company ProQR has announced encouraging results from its early analysis of the phase 1/2 trial of QR-421a, an innovative approach to treating sight loss caused by mutations in a particular section of the USH2A gene.
First patient receives ground-breaking treatment
In January 23-year-old Jake Ternent became the first person with an inherited sight loss condition to be treated in the UK with Luxturna (voretigene neparvovec) for Leber congenital amaurosis (LCA).