Two groups of people seated at round tables

Information and support

Are you affected by inherited sight loss? We are here to help.

Retina UK* is a national charity. We offer information and support to people affected by inherited sight loss to enable them to lead better lives today and fund medical research to accelerate the search for treatments for the future.

We are here for you. You could be:

Recently diagnosed
Living with inherited sight loss for a while
Someone with a family history of the condition
A family member or friend of someone affected
A professional providing support.

*Retina UK was previously known as RP Fighting Blindness and the British Retinitis Pigmentosa Society (BRPS).

Download a copy of our leaflet

PDF file | 678 KB

Download the leaflet

“Since my diagnosis of Retinitis Pigmentosa four years ago, I have reached out to Retina UK several times and have always been moved by their compassion and understanding.”

Look Forward

The latest three issues of our newsletter Look Forward are available here in pdf, doc (text only) and audio formats.

Look Forward – Winter 2025 – Issue 188

This is the final edition of Look Forward this year and what a year it has been! We’ve had some very positive feedback about our Conferences and the Big Give Christmas Challenge is back - a great opportunity to double your donation at no extra cost to you! We’ve included a handy ‘What’s on’ article which outlines some of our plans for 2026. We would like to take this opportunity to wish all of our readers a very Merry Christmas and a happy and fulfilling New Year.

The cover of the Autumn 2025 edition of Look Forward

Look Forward – Autumn 2025 – Issue 187

Since the publication of this newsletter our founder and honorary president Lynda Cantor MBE has passed away. We are all deeply saddened by this news.

The cover of the summer 2025 edition of Look Forward

Look Forward – Summer 2025 – Issue 186

This edition marks the start of the charity's 50th anniversary year. It includes lots of ways to get involved over the next 12 months along with details of our Annual and Professionals' Conferences in September.