Thank you to the sponsors of the Sight Loss Survey 2025:
Sight Loss Survey 2025
We want to ensure our current and future activities are relevant and that they respond to your needs. The only way we can be confident of this is to ask about your experiences, views and what matters to you.
Every response is important to us, but we are particularly keen to hear from a more diverse group, including young adults and those from a variety of ethnic backgrounds.
The information we gather through the Survey is powerful and can influence positive change. We have used it to develop new support services, raise funds for vital projects and even influence decision makers to make Luxturna, the first treatment for an inherited sight loss condition, available on the NHS.
We want to hear from even more people in 2025, so if you have completed the Survey in the past, it is vital that you take part again, so that we can track changes.
Anyone living with inherited sight loss can complete the survey. If they are under 18, it can be completed by a parent or guardian on their behalf.
We hope that you will also take the opportunity to tell us a little more about yourself so that we can contact you with information most relevant to you in the future. Those who wish to respond anonymously can of course do so.
You can complete the survey online by visiting surveymonkey.com/r/SightLossSurvey2025, or call our office on 01280 821334 to book an appointment with a member of our team to complete the survey on your behalf over the telephone. The survey will take around 40 minutes to complete (longer if using assistive technology), so grab a cuppa.
The deadline for completed surveys is Friday 25 April 2025. If you have any questions, Vanessa Davis, Data and IT Manager, would be happy to answer them. She can be contacted at vanessa.davis@RetinaUK.org.uk or on 01280 821334.