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Fancy fundraising for Retina UK? Here’s a few pointers to help get you started.

Our monthly e-Newsletter featuring the latest updates from Retina UK. Subscribe now to receive these updates directly to your email.

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Russ was diagnosed with Choroideremia at the age of 11, after visiting caves in Spain and not being able to see anything.

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Our monthly e-Newsletter featuring the latest updates from Retina UK. Subscribe now to receive these updates directly to your email.

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A virtual delegate bag for our online attendees - Professionals' Conference 2024

The aim of these pages is to increase the level of awareness and understanding of genetic testing and genetic counselling among people living with inherited retinal dystrophies, empowering them to make fully informed decisions about their lives, healthcare and family planning.

Genetic testing, usually via a blood sample, is used to try and identify which gene contains the fault that is causing an individual’s sight loss.

Inside this edition, set yourself a challenge in 2024, plus find out about our brand new lottery.

• Look Forward
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The following questions are often asked by people contacting Retina UK.

Making yourself aware of the what you are entitled to, and understanding the diagnosis pathway for inherited sight loss, will put you in a stronger position to seek better support.