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Different inherited sight loss conditions present noticeable symptoms at different times.

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“All the promising research makes you feel like there is light at the end of that very dark tunnel after all.”

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We have created Discover Wellbeing to help people affected by inherited sight loss to develop an awareness of emotional wellbeing and the practical skills to adapt to life’s ups and downs.

Raise money to help support people affected by inherited sight loss to lead better lives today and accelerate the search for treatments for the future.

Inherited progressive sight loss is caused by a range of rare genetic conditions. We specialise in those which affect the retina.

In 2014 we funded an exciting new collaborative project. The UK Inherited Retinal Dystrophy Consortium (UKIRDC) Project brought together the four largest research groups in the UK specialising in inherited retinal diseases (IRDs).

Volunteers are highly valued members of the Retina UK team and essential to our ability to achieve our vision of a world where all those affected by inherited retinal conditions are able to live a fulfilling life.

A general overview of the clinical trials process and practicalities, including issues to consider if you are given the opportunity to take part.

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Our monthly e-Newsletter featuring the latest updates from Retina UK. Subscribe now to receive these updates directly to your email.

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Dr Rachel Taylor is part of the UK Inherited Retinal Dystrophy Consortium (UKIRDC) team at the University of Manchester.

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