Search Results for “Live stream events” - Page 12

Meet our community: Russ Stephenson

Russ was diagnosed with Choroideremia at the age of 11, after visiting caves in Spain and not being able to see anything.

Image shows a runner in a blue running vest with 'Sarah - Retina UK' on the front in white font. Sarah is smiling and has her 'thumbs up'.

Royal Parks Half Marathon

This stunning central London half marathon, takes in some of the capital’s world-famous landmarks on closed roads.

Run
London

Look Forward – Spring 2023 – Issue 179

The Spring 2023 edition of the Retina UK newsletter, Look Forward, which includes articles about our upcoming events, research updates and more.

The letters FAQ in green sitting on top of lots of question marks in red, green and blue

Fundraising FAQs

Fancy fundraising for Retina UK? Here’s a few pointers to help get you started.

Events

Find out about our upcoming events. Whether you're looking for a webinar, a local peer support group or you're hoping to run a marathon, we've got something for you.

Discover Wellbeing

We have created Discover Wellbeing to help people affected by inherited sight loss to develop an awareness of emotional wellbeing and the practical skills to adapt to life’s ups and downs.

Meet our volunteers: Joe Rizzo-Naudi

Our amazing volunteers are diverse in age, background and ethnicity. The one thing they have in common is that they are all living with, or directly affected by, an inherited sight loss condition.

The text in graphic says: Eye care support pathway Supporting you at every stage of your journey Underneath a graphic shows the four stages of an individual’s journey with the following text: 1. Having my initial appointment 2. Waiting well 3. Having my diagnosis confirmed 4. Waiting well 5. Support after my diagnosis 6. Waiting well 7. Living well with my condition Underneath this graphic it outlines what an individual can expect on their journey. Understand my eye care journey Understand my diagnosis Access emotional and practical support

The Eye Care Support Pathway

The Eye Care Support Pathway is a new framework to ensure patients have timely access to information, advice and support throughout their eye care journey.

What we do

Our vision is a world where everyone with inherited sight loss is able to live a fulfilling life.

A group of people seated around a table. A man in the foreground is wearing a Retina UK tshirt with his back to the camera

Join our Lived Experience Panel

Our sight loss survey highlighted that you have a real appetite to get involved in representing the inherited sight loss community through activities like focus groups, surveys and research projects via the Retina UK Lived Experience Panel.