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High quality information on genetic testing and counselling for families affected by inherited sight loss is now available in one place thanks to the launch of an innovative new website, Unlock Genetics.
A new approach to treating inherited sight loss
Information for healthcare professionals: Genetic testing and counselling in inherited retinal disease
This page explains the different types of genetic tests: diagnostic testing, predictive testing, carrier testing and research testing
Sepul Bio begins clinical trial of ultevursen for USH2A-associated RP
Tuesday 26 August 2025, 7.00pm - 8.00pm - via Zoom - Please come and join our facilitators Danielle and Perm for our latest Women's Peer Support Group get together and social catch up.
Autoimmune diseases are quite distinct from inherited retinal dystrophies.
The cost-of-living crisis is having a major impact on the lives of blind and partially sighted people. Many people are becoming increasingly concerned about how they will make ends meet. Sight Loss Charities have come together as between us we can offer help and support.
Charities representing blind and partially sighted people are urging the UK Government to increase benefits in line with inflation rather than wages, when a decision is made at the end of the month.
