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Our Retina UK Peer Support Group network offers information and support via regular meetings both online or in-person.

Many research studies could not take place without the participation of people living with inherited sight loss.

Best disease, also known as Best vitelliform macular dystrophy (BVMD), is is an inherited eye condition associated with progressive degeneration of the macula and is a form of juvenile macular dystrophy.

The content on this site will have answered some of your queries about inherited sight loss and associated syndromes, but everyone’s circumstances are different and you may have further questions.

Welcome to the winter edition of Look Forward. It’s packed full of news from our Conferences, the latest research news and an interview with Hassina Zeriri, one of our funded PhD students.

We have also included details of lots of ways you can get involved with Retina UK over the coming months, along with some suggested festive fundraising for the Christmas period.

• Look Forward
• Audio
• Written

This edition of Look Forward includes the very latest news about an experimental therapy by Retina UK funded researchers, an article about one of our PhD students, a calendar of events in 2025, the usual research news round-up and lots more. Please take the time to complete our Sight Loss Survey, enclosed with this edition. You can find out more about the Survey.

• Look Forward
• Audio
• Written

Retina UK has a number of online support resources which we offer via social media.

Whether you are looking for practical information or emotional support, online, by phone or face-to-face, we’re here to help.

X-linked inheritance means that the faulty gene is located on the X chromosome, the larger of the two sex chromosomes.

Autosomal recessive inheritance means that the faulty gene is on an autosome (any chromosome other than the sex chromosomes) and that both copies need to be faulty to cause sight loss