Men’s Peer Support Group
Wednesday 27 August 2025, 7.00pm - 8.30pm - via Zoom - Come and join us for our latest Men's Peer Support Group online social catch up.
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A genetic diagnosis for RP can give rise to unexpected surprises
James Birtley is a Retina UK supporter and volunteer who is living with retinitis pigmentosa. He is also a scientist with a particular interest in the structure of proteins, the complex molecules that form the building blocks of our bodies.
Hope for the future
In this article, we hear Colin's story and the reasons why he has hope for the future.
Genetic testing: an essential topic for discussion with the IRD community
As Luxturna reaches the clinic and other gene-specific therapies for inherited retinal disease get closer to the end of the development pipeline, it is becoming ever more important that affected families can access a genetic diagnosis, potentially opening up choices around treatment and clinical trial participation.
New website aims to increase understanding of genetics
High quality information on genetic testing and counselling for families affected by inherited sight loss is now available in one place thanks to the launch of an innovative new website, Unlock Genetics.
A new approach to treating inherited sight loss
A new approach to treating inherited sight loss
For professionals
Information for healthcare professionals: Genetic testing and counselling in inherited retinal disease
Types of genetic testing
This page explains the different types of genetic tests: diagnostic testing, predictive testing, carrier testing and research testing
Sepul Bio begins clinical trial of ultevursen for USH2A-associated RP
Sepul Bio begins clinical trial of ultevursen for USH2A-associated RP
Women’s Peer Support Group
Tuesday 26 August 2025, 7.00pm - 8.00pm - via Zoom - Please come and join our facilitators Danielle and Perm for our latest Women's Peer Support Group get together and social catch up.