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Alstrom syndrome is an inherited condition which affects many body systems.

Usher syndrome is an inherited condition that affects both hearing and vision.

As part of Retina UK's birthday celebrations, we would love for you to face your fears by taking on a skydive for us!

• Extreme Challenges
• Various

These very rare syndromes (NARP, Bassen-Kornweig, PXE, Norrie) affect the eyes as well as other parts of the body.

Our Retina UK Peer Support Group network offers information and support via regular meetings both online or in-person.

This edition of Look Forward includes the very latest news about an experimental therapy by Retina UK funded researchers, an article about one of our PhD students, a calendar of events in 2025, the usual research news round-up and lots more. Please take the time to complete our Sight Loss Survey, enclosed with this edition. You can find out more about the Survey.

• Look Forward
• Audio
• Written

Welcome to the winter edition of Look Forward. It’s packed full of news from our Conferences, the latest research news and an interview with Hassina Zeriri, one of our funded PhD students.

We have also included details of lots of ways you can get involved with Retina UK over the coming months, along with some suggested festive fundraising for the Christmas period.

• Look Forward
• Audio
• Written

Leber Congenital Amaurosis (LCA) is a rare genetic eye disease that appears at birth or in the first few months of life.

Retina UK has a number of online support resources which we offer via social media.

Whether you are looking for practical information or emotional support, online, by phone or face-to-face, we’re here to help.