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Familial Exudative Vitreoretinopathy (FEVR) is an inherited disorder that causes progressive vision loss.

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Is 2024 the year that you join #TeamRetinaUK & take on the North Downs 50 Ultra Challenge?

• Walks & Treks
• United Kingdom

Many research studies could not take place without the participation of people living with inherited sight loss.

Is 2024 the year that you join #TeamRetinaUK & take on the London 2 Brighton Ultra Challenge?

• Walks & Treks
• United Kingdom

Do you want to take part in the world-famous TCS London Marathon, from the comfort of your own city? Take part virtually on race day and join #TeamRetinaUK in 2025!

• Running
• United Kingdom

Join Lauren as she chats with Paula McGrath, Deputy CEO of Retina UK, about the 2025 Sight Loss Survey

• Podcast
• Audio

We want to ensure our current and future activities are relevant and that they respond to your needs. The only way we can be confident of this is to ask about your experiences, views and what matters to you.

• Information Events

Would you like to help shape Retina UK’s future? Do you want to ensure decision-makers understand the impact of inherited sight loss? If so we’d love to hear from you.

• News

Cataracts occur fairly frequently and at a relatively early age within the Retina UK community of people with inherited retinal conditions. A question that comes up over and over again is whether or not to have cataract surgery.

• Podcast
• Audio