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Her work with us enables her to achieve her aim of empowering others living with similar conditions to her own.

• Case study - Ambassador
• Written

Martin's son was diagnosed with Stargardt’s at a young age which has led Martin to take a close interest in the progress of research into Retinal disease.

• Trustee
• Written

Roger has retinitis pigmentosa, as do his son, mother and grandfather. He was officially diagnosed aged 16.

• Trustee
• Written

Prof John Marshall is the Frost Professor of Ophthalmology at the Institute of Ophthalmology at University College London.

• Trustee
• Written

Lucy has worked with a number of charities in volunteer roles including fundraising and assistance dog training.

• Trustee
• Written

Simon spent 40 years as a consultant ophthalmic surgeon at the North Hampshire Hospital in Basingstoke.

• Trustee
• Written

Ashley is currently the Vice President & Chief Financial Officer, International for Vertex Pharmaceuticals.

• Trustee
• Written

Vanessa is the General Counsel at the Alan Turing Institute, the UK’s national data science and artificial intelligence research institute.

• Trustee
• Written

Bhavini was diagnosed with RP in 1997 aged 17. The consultant who confirmed her diagnosis told her that “there was no cure or treatment and she should prepare to go blind".

• Case study - community
• Written

Russ was diagnosed with Choroideremia at the age of 11, after visiting caves in Spain and not being able to see anything.

• Case study - community
• Written