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The content on this site will have answered some of your queries about inherited sight loss and associated syndromes, but everyone’s circumstances are different and you may have further questions.

Retina UK Sight Loss Survey 2025 Findings from our survey of over 600 people living with inherited sight loss. June 2025

Retina UK Sight Loss Survey

We carried out our first Sight Loss Survey in 2019 and used what we learned to improve our support. It was repeated in 2022 and in 2025. These are the findings.

The cover of the winter 2024 edition of Look Forward

Look Forward – Winter 2024 – Issue 184

Welcome to the winter edition of Look Forward. It’s packed full of news from our Conferences, the latest research news and an interview with Hassina Zeriri, one of our funded PhD students.

We have also included details of lots of ways you can get involved with Retina UK over the coming months, along with some suggested festive fundraising for the Christmas period.

The cover of the spring 2025 edition of Look Forward, featuring a photograph of comedian Chris McCausland on the cover

Look Forward – Spring 2025 – Issue 185

This edition of Look Forward includes the very latest news about an experimental therapy by Retina UK funded researchers, an article about one of our PhD students, a calendar of events in 2025, the usual research news round-up and lots more. Please take the time to complete our Sight Loss Survey, enclosed with this edition. You can find out more about the Survey.

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