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Information and support services

Whether you are looking for practical information or emotional support, online, by phone or face-to-face, we’re here to help.

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Therapy development updates

There are many ongoing clinical and laboratory studies around the world, exploring innovative approaches to treating inherited sight loss.

Retina UK Sight Loss Survey 2025 Findings from our survey of over 600 people living with inherited sight loss. June 2025

Every experience counts: Insights from our sight loss survey

A huge thank you to everyone who completed our 2025 sight loss survey. This year we received over 600 responses. It follows similar surveys in 2019 and 2022 which led directly to the introduction of our Unlock Genetics and Discover Wellbeing resources, as well as shaping our work with the professional community who support people with inherited sight loss.

Retina UK webinars: From isolation to exploration - what you can do to build your confidence when travelling

From isolation to exploration

During Loneliness Awareness Week, we're hosting a special webinar to address the challenges faced by individuals with sight loss when it comes to travel and mobility.

How we can support you in your role

Whether you are a professional looking for practical information for yourself, or practical or emotional support for your clients, online, by phone or face-to-face, we're here to help. All of our services are free to access and offered in a range of accessible formats.