Meet our Trustee: Professor John Marshall MBE
Prof John Marshall is the Frost Professor of Ophthalmology at the Institute of Ophthalmology at University College London.
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Learning from your experiences
Thank you to all those who completed our recent Sight Loss Survey – almost 700 of you took the time to share your experiences.
Meet our Trustee: Ashley Grist, Treasurer
Ashley is currently the Vice President & Chief Financial Officer, International for Vertex Pharmaceuticals.
Meet a Researcher: Dr Jenny Dewing
Jenny Dewing is a postdoctoral researcher working on a Retina UK-funded project with Dr Arjuna Ratnayaka at the University of Southampton.
e-Newsletter April 2024
Our monthly e-Newsletter featuring the latest updates from Retina UK. Subscribe now to receive these updates directly to your email.
Webinar: How your donations make a difference…in conversation with our new research grantees
Join Research Development Manager, Kate Arkell as she speaks to our latest research grantees about their projects.
Meet a Researcher: Dr Rachel Taylor
Dr Rachel Taylor is part of the UK Inherited Retinal Dystrophy Consortium (UKIRDC) team at the University of Manchester.
Genetic testing: an essential topic for discussion with the IRD community
As Luxturna reaches the clinic and other gene-specific therapies for inherited retinal disease get closer to the end of the development pipeline, it is becoming ever more important that affected families can access a genetic diagnosis, potentially opening up choices around treatment and clinical trial participation.
Meet a Researcher: Hajrah Sarkar
Hajrah Sarkar is a PhD student whose project is funded by Retina UK.
Significantly worse vision found in female carriers of X-linked RP and Choroideremia
It was previously believed that female carriers of X-linked inherited retinal diseases (IRDs) like X-linked retinitis pigmentosa (RP and Choroideremia) remained unaffected by sight loss.