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At the scariest time of the year, do you dare to face your fears by taking on a thrilling skydive for Retina UK? Join us at various airfields around the UK.

• Extreme challenges
• Various

The content on this site will have answered some of your queries about inherited sight loss and associated syndromes, but everyone’s circumstances are different and you may have further questions.

Gyrate atrophy of the choroid and retina, shortened to gyrate atrophy, is an inherited disorder of protein metabolism characterised by progressive vision loss.

Charles Bonnet syndrome (CBS) causes people who have lost a lot of sight to see things that aren’t real (hallucinations).

Could you take part in RideLondon 2025 for #TeamRetinaUK?

• Cycle
• London

Could you take on an adventure of a lifetime for Retina UK and take part in the Sahara Desert Trek in November 2025?

• Walks and treks
• United Kingdom

May is National Walking Month! Are you ready to join #TeamRetinaUK in May for our brand new daily 5K challenge? Your support will allow us to continue supporting those who are living with inherited sight loss.

• Walks and treks
• United Kingdom

These very rare syndromes (NARP, Bassen-Kornweig, PXE, Norrie) affect the eyes as well as other parts of the body.

X-linked retinoschisis (XLRS) is an inherited condition that causes early loss of mainly central vision in males.

Cataracts and macular oedema are both associated with inherited sight loss and may respond to treatment.