Children and young people
Different inherited sight loss conditions present noticeable symptoms at different times.
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Webinar: Hair care and styling with Anna Cofone
We are excited to be joined by Hair Stylist Anna Cofone to explore all things hair and scalp care.
Webinar: The Big Give: How your donations make a difference
Join us to find out how your donations make a direct different and fund research.
Frequently asked questions
These are some of the most commonly asked questions about genetic testing and counselling.
Meet a Researcher: Elena Piotter
Nurturing a new generation of scientists is a vital investment in the future of retinal disease research, so we are delighted to be funding, in collaboration with the Macular Society, a new PhD studentship at Oxford University, supervised by Professor Robert MacLaren.
Webinar: Getting involved with Retina UK, the value of volunteering
Explore the value of volunteering with the Retina UK team, listen as they share their thoughts on volunteering and the benefits it’s brought them. From raising their self esteem and confidence, to securing employment.
Meet a Researcher: Dr Jenny Dewing
Jenny Dewing is a postdoctoral researcher working on a Retina UK-funded project with Dr Arjuna Ratnayaka at the University of Southampton.
Genetic testing: an essential topic for discussion with the IRD community
As Luxturna reaches the clinic and other gene-specific therapies for inherited retinal disease get closer to the end of the development pipeline, it is becoming ever more important that affected families can access a genetic diagnosis, potentially opening up choices around treatment and clinical trial participation.
Meet our volunteers: Cindy Peacock
“Being part of something and feeling that you are not alone,” are just two of the positive benefits Cindy Peacock says she experiences as a volunteer with Retina UK.
FAQs: Luxturna (voretigene neparvovec)
Luxturna, a gene therapy, is only for the treatment of Leber congenital amaurosis type 2 (LCA2) and severe early-onset RP caused by mutations in a specific gene called RPE65.