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Family planning

If you, or a close relative, are living with a genetic sight loss condition, there may be a chance that your children will inherit it.

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Getting a referral

If you have a diagnosis of an inherited retinal condition, or you are a close relative of somebody living with one of these conditions, you are entitled to access testing and genetic counselling.

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TCS London Marathon 2025

Join #TeamRetinaUK for the iconic 2025 TCS London Marathon! Soak up the incredible atmosphere as you run from Blackheath to The Mall finish line where you’ll get your very own marathon medal.