Volunteer Impact Report
Our volunteers are highly valued members of the Retina UK team and their roles are essential to help support and enable people affected by inherited sight loss to live fulfilling lives.
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Our volunteers are highly valued members of the Retina UK team and their roles are essential to help support and enable people affected by inherited sight loss to live fulfilling lives.
Professor Mariya Moosajee looks at the latest research, clinical trials and treatment prospects for people affected by Usherβs syndrome.
With a significant proportion of inherited retinal conditions being caused by unidentified genetic faults, and many families unable to get clear results from genetic tests in clinic, the project set out to solve previously undiagnosable cases and discover more of the genes and mutations that are associated with sight loss.
Retina UK is delighted to have awarded a new three-year research grant to Prof Majlinda Lako at Newcastle University for a project entitled: To establish AAV.PRPF31 gene augmentation in PRPF31-deficient RPE and photoreceptor cells and assess its efficacy in restoring RPE and photoreceptor function.
Raise money to help support people affected by inherited sight loss to lead better lives today and accelerate the search for treatments for the future.
With more treatments coming through the development pipeline, we are all hopeful that more of those living with inherited sight loss will be offered the opportunity to take part in clinical trials in the years to come.
Bhavini was diagnosed with RP in 1997 aged 17. The consultant who confirmed her diagnosis told her that βthere was no cure or treatment and she should prepare to go blind".
We are proud to launch our new Young Persons Project, which will play a significant role in providing impactful and timely support for young people with inherited sight loss and mental health challenges, across the UK.
Our Medical Advisory Board (MAB) advises our Board of Trustees in order that they can approve grants for research projects.
Have you ever been tempted to take part in the TCS London Marathon? In 2022 the TCS London Marathon raised Β£58.3 million for charity so itβs a vital source of income.