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A view of a group of people seated all facing to the left of the image. The focus is on a lady holding a microphone. She has long dark hair

Joining the research effort

Many research studies could not take place without the participation of people living with inherited sight loss.

Retina UK Knowledge-base: Best disease

Best disease

Best disease, also known as Best vitelliform macular dystrophy (BVMD), is is an inherited eye condition associated with progressive degeneration of the macula and is a form of juvenile macular dystrophy.

Retina UK Knowledge-base: Refsum syndrome

Refsum syndrome

Refsum syndrome is an inherited metabolic condition, associated with elevated phytanic acid plasma levels, which impacts many body systems.

Retina UK Knowledge-base: Rare syndromes

Rare syndromes

These very rare syndromes (NARP, Bassen-Kornweig, PXE, Norrie) affect the eyes as well as other parts of the body.

The cover of the winter 2024 edition of Look Forward

Look Forward – Winter 2024 – Issue 184

Welcome to the winter edition of Look Forward. It’s packed full of news from our Conferences, the latest research news and an interview with Hassina Zeriri, one of our funded PhD students. We have also included details of lots of ways you can get involved with Retina UK over the coming months, along with some suggested festive fundraising for the Christmas period.

Look Forward – Spring 2025 – Issue 185

This edition of Look Forward includes the very latest news about an experimental therapy by Retina UK funded researchers, an article about one of our PhD students, a calendar of events in 2025, the usual research news round-up and lots more. Please take the time to complete our Sight Loss Survey, enclosed with this edition. You can find out more about the Survey.

A group of supporters taking on 5K A Day In May.

5K A Day In May 2026

May is National Walking Month! Are you ready to join #TeamRetinaUK in May for our daily 5K challenge? Your support will allow us to continue supporting those who are living with inherited sight loss.

A male runner smiles as he holds his Marathon medal.

Take on a challenge

With your challenge, you’ll help support people affected by inherited sight loss to lead better lives today and accelerate the search for treatments for the future.

A group of supporters taking on 5K A Day In May.

5K A Day In May 2025

May is National Walking Month! Are you ready to join #TeamRetinaUK in May for our daily 5K challenge? Your support will allow us to continue supporting those who are living with inherited sight loss.